Hepatitis B is a serious and potentially life-threatening virus that affects millions of people worldwide. From diagnosis to dating, living with hepatitis B can present unique challenges and obstacles for those affected. In this blog series, we had the opportunity to interview a woman who wishes to remain anonymous about her journey with hepatitis B.
More Than Just a Statistic
According to the World Health Organization, an estimated 257 million people are living with chronic hepatitis B infection globally. In Nigeria, where our anonymous patient resides, the prevalence of hepatitis B is particularly high, with an estimated 11% of the adult population testing positive for the virus.
Our anonymous patient is a woman in her forties, navigating the complexities of living with hepatitis B in a society where stigma and misinformation often surround the virus. Through her candid and insightful responses to our questions, she sheds light on the challenges and triumphs she has experienced on her journey with hepatitis B.
Join us as we explore the ups and downs of living with hepatitis B, from the initial diagnosis to the complexities of dating and relationships. Our anonymous patient’s story is a testament to the resilience and strength of those living with chronic illness, and we hope that her words will inspire and educate others facing similar challenges.
Living With Hepatitis B
- How were you diagnosed with Hepatitis B?
Response: I was starting a new job and was required to have a Fitness check. My blood test result came out positive. It was my Manager who broke the news to me. - How has Hepatitis B impacted your daily life?
Response: To be fair, I am doing very well. I am quite active, I do a lot of walking, I do get tired but that is as a result of my line of work. I am very happy, I have a great support system, close friends and family. I feel fulfilled in my life. I thank God for everything. His hand is constantly upon me.
A viral load of > 10 000 copies/mL (2000 IU/mL) is a high risk zone and as at my last check-up 2weeks ago, my levels was 101 IU/mL. I’m feeling really good about my progress! All the hard work I’ve put in with healthy choices and staying active is paying off. I’ve cut back on drinking to support my liver, and I’m hopeful that my levels will keep going down until they’re undetectable. It has not impacted my daily life in any way, just a minor nuisance I have to declare from time to time.
- What are some of the biggest challenges you face living with Hepatitis B?
Response: In the Hospitality Industry, a pass on the food handlers test is required. I cannot work in certain positions that has to do with food. It’s procurement, preparation, marketing and serving. Most successful hotel managers (specific to the industry I previously worked in) started off in Food and Beverage. This is limiting career wise.
Dating and Relationships
- My second challenge would be DATING. You have to declare that you have the HPV virus before the first kiss, in my opinion. Research states that you cannot catch the virus via saliva, primarily kissing. Some people tend to feel a different way regardless of what research says on any topic. In this case, I share as soon as possible. This can be nerve racking; what would be their reaction?
In my experience, I have had quite some that did not mind. Who were willing to take the test and get the vaccine. A few declines as well, and this can be hurtful but I take comfort in knowing that only one who’s true would be willing to weather the storm with you.
- What are some things you wish people knew about Hepatitis B?
How the virus is transmitted.
That there is a vaccine that can prevent it. - How do you maintain a healthy lifestyle to support your liver health?
I try to make healthy choices, food wise; portion control, eating greens, loads of garlic, green tea and lemon, healthy portions of meat/chicken, etc. Less alcohol consumption and an active walking lifestyle. I have self-indulgent days but everyone is allowed one, now and again. - Do you feel comfortable talking to others about your Hepatitis B diagnosis?
Yes and no. If it’s to close friends and family, I’m comfortable talking about it. When speaking about it with a potential employer or a potential date, it can be a bit uncomfortable.
Stigma or Discrimination
- Have you experienced any stigma or discrimination due to your condition?
I have fortunately not experienced this. I have only applied to departments where I am not a food handler. I can only say that I’ve been discriminated against in dating. Which to be fair, people are allowed to be with who they are comfortable with. Self-preservation is key.
Hopes for Hepatitis
- What are your hopes for the future in terms of managing Hepatitis B?
Response: Creating more awareness for carriers so they can successfully live with it. Personally, for my viral load levels to keep decreasing.
This post isn’t just about challenges, it is to let you know that living with Hepatitis B doesn’t have to define you. Looking for more information on Hepatitis B, read more on the ABC of Hepatitis
